Mia
 

Due to her missing parts of her brain she has many seizures periodically throughout the day.  Her  seizures are kept under control by the drug vigabratin.   She also has optic displasia, which spikes spontaneous fevers due to her abnormal thermostat  which is controlled by the hypothalamus in  the brain.  She sweats from her feet and not her head, because of the brain disorder and the effects it has on her hypothalamus gland.  She has a gastrostomy tube to feed her through her stomach and requires frequent suctioning throughout the day. Mia also goes into occasional crying spells where it is very difficult to stop her from crying. Sometimes she cries for days on end and all the mother can do is rock her and hold her. Its at these times that she plays classical music to soothe Mia She calms down somewhat listening to classical and  nature sounds. She loves to listen to the  music, it seems to soothe her pain away and calm her down when nothing else will.
 Mia’s life expectancy is day to day.  She lives in a beautiful, loving foster home where she receives all of the love she so justly deserves.  Despite all of the frightening information given to her family before she came to live with them, Mia is still fighting. Fighting every day to take another breath. Fighting to stay alive. She truly is a miracle baby.

Mia's health  is very unpredictable.  She is often sent to the hospital suffering  life and death situations.  She was just recently discharged  from the hospital after suffering from grand mal seizures and respiratory distress.  Once again mom and dad watch her fight for her right to stay alive. Then after days of prayers she miraculously comes home to her familiar surroundings to be loved  and comforted by mom and dad.  Again defying all odds, she stares up at her parents with her big eyes as if to say its okay. I did it again. I’m home again. She is such a precious child. Doctors again tell the family to take her home and  enjoy what little time they have left with Mia.
She is our angel, “Mia” comes from that.  She has inner and outer strengths beyond comprehension.  Every minute we have with her we cherish.  She has taught us how precious life is. She has shown  the family what courage is. Mia cannot speak words but she most definitely communicates with her eyes, actions and sounds.
 
 
 
 
 

Mia is surrounded by people who love her.  She has 5 siblings ages ranging from 2-17. From the youngest to oldest their names are, Shanley Hope, Ryan, Allen, Jennifer, and Sheri. She  is also blessed with two very loving parents, Laurel and Darcy.  Parents who some days survive on 3-4 hours of sleep a night caring for all their children. They also have a 2 year old who is experiencing seizures and have to cope with  the terrible two’s syndrome. All in all, one big loving family who do their best to make their house into the best home that these children could ever have.

Mia is a very special child with very special parents.